Real case study - Impact on couples when one goes into a nursing home

Forum Question

Impact on couples when one goes into a nursing home

When a loved one enters aged care, the process can feel overwhelming, especially when family dynamics and financial concerns are involved. Below, we’ll explore a real-life scenario and provide practical steps for managing similar situations effectively.

Understanding the Situation

A 94-year-old man recently moved to respite care after spending five weeks in a rehabilitation hospital. The move, orchestrated by his daughter, was done with the potential for permanent placement in mind. However, his wife—who has limited mobility and a restricted driving license—prefers he reside in a facility closer to home. Compounding the issue, the man’s financial arrangements are tied to a Level 4 home care package, which risks being lost if he transitions to permanent aged care.

Additionally, family dynamics have become strained. The daughter is making unilateral decisions about his care without consulting his wife, who is also dealing with financial limitations. Concerns have arisen about the legality of the admission papers signed by the man, particularly given his unconfirmed dementia diagnosis.

Key Concerns

  • Legal and Financial Authority: Who holds the legal authority to make decisions, such as signing admission papers and accessing financial resources?
  • Impact on Home Care Packages: What happens to the balance of the home care package if the move to permanent care proceeds?
  • Inclusivity in Decision-Making: How can the wife—and potentially other stakeholders—have a say in these decisions?

Recommended Steps for Families

Seek Expert Financial Advice

Engaging an aged care financial adviser can provide clarity on managing finances and navigating the aged care system. These professionals specialize in aged care finances and can address concerns such as:

  • Understanding the implications of moving from home care to permanent aged care.
  • Strategizing how to preserve or best utilize funds like the $42,000 in the home care account.
  • Exploring options to ensure financial support for the spouse.

For national assistance, consider:

  • Sydney Aged Care Financial Advisers: 1300 659 677
  • Affinity Aged Care Financial Services: 02 8078 0888

Alternatively, ask friends or networks for recommendations.

Clarify Legal Powers

Confirm who holds the Power of Attorney (POA) and Enduring Guardianship for both parties. If necessary, organize a POA for the wife so she can manage shared financial resources, including accessing her husband’s superannuation account.

If there is contention over the husband’s care decisions, consult a lawyer who specializes in elder law to ensure all actions comply with legal standards.

Ensure Proper Diagnosis

Arrange for an official dementia diagnosis from a qualified medical professional. This will clarify the man’s capacity to make decisions, including signing legal documents such as admission papers.

Reevaluate Aged Care Placement

Respite care is not a permanent arrangement. The family has the option to move him to a different facility closer to his wife. Conduct thorough research into local aged care homes and ensure all family members’ concerns are addressed.

Streamline Home Care for the Wife

With her own Level 2 home care package, the wife may face out-of-pocket costs. Financial planning can help offset these expenses by leveraging available assets and interest income effectively.

Encourage Transparent Communication

Foster open dialogue among family members to ensure everyone feels heard. Consider mediation if disputes arise about the husband’s care.

Why Professional Help Matters

When health and financial decisions converge, time-sensitive choices can lead to confusion and family conflict. Engaging professional advisers ensures families have the tools to make informed decisions while minimizing financial losses and emotional strain.

By addressing legal, financial, and logistical concerns proactively, families can better navigate the complexities of aged care and ensure the well-being of their loved ones.

For personalized advice, consult aged care financial advisers or elder law specialists who understand your unique situation.

Read original forum question and answer

My 94-year-old stepfather has just been placed in respite at an aged care facility by his daughter after spending 5 weeks in a rehab hospital, with a view to permanent placement. His daughter had him sign the admission papers to the aged care facility and I am concerned whether this is even legal given the unconfirmed diagnosis of dementia. The rehab centre is saying he has dementia but we have had no official statement of this from any doctor. He is currently on a level 4 home health care package which started June 2013 as a lower level, that he does not seem to pay anything for and has a balance in his home care account of $42,000 (which he will lose when he goes to permanent care). His daughter and son-in-law are making decisions on his welfare without consulting my mother - his wife, in collusion with the rehab centre and aged care centre. The daughter only looked at 1 aged care facility before putting him in respite. My Mother does not want him to stay at this centre where he is currently in respite as it is too far away for her to drive (she has a restricted driving licence and will probably lose it soon when GP assesses her). I hold a POA and Enduring Guardianship for my mother and am able to access her bank accounts via the various banks websites. My concern is that his daughter wants to get a POA for her father and my mother will be left with no income as his substantial (defined benefit scheme) State Super goes into an account in his name that she cannot access. They have cash assets of over a million dollars between them so receive no pension. I am going overseas in 5 days and have organised my mother to have her own home care package (level 2)- but I think she will have to pay maximum fees and will be using her own bank account which only accrues interest. Should I be organising a POA for my mother so she can access his bank accounts and the superannuation payments.

 

Sorry to read about your situation. The absolute best thing you can do is seek professional financial advice from someone who specialises in aged care finances. Not only will they be able to advise on the best approach with your mum’s husband’s daughter, but they know the aged care finance system back to front and know things relevant to your mum’s specific situation. If you are looking for a recommendation we believe the below two are very good. Both also take on clients nationally (you don’t have to be based in Sydney for example.)

1. Sydney Aged Care Financial Advisers, who can be contacted on 1300 659 6772

2. Affinity Aged Care Financial Services, who can be contacted on 02 8078 0888

Asking friends if they have an Aged Care Financial Advisor is another good way to find a good Adviser. When an event happens (like the one that resulted in your mum’s husband being in rehab hospital for 5 weeks) things can move very quickly and hospitals can put quite a bit of pressure on the payment to respite care. Of course, the patient/ resident doesn’t need to stay at the respite care location, and they are free to move to a different aged care home. Perhaps that could help explain why your mother’s husband’s daughter didn’t consult your mother in his move but you’re right that he is free to move somewhere else and it seems reasonable to think his wife should be included in that decision. We hope this helps.

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A special thanks to our contributors

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Caroline Egan

DCM Media, agedcare101

Caroline has a wealth of experience writing within the retirement and aged care sector and is a contributing journalist for the Villages.com.au and agedcare101 blog and accompanying newsletters.

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Ian Horswill

Journalist

Ian is a journalist, writer and sub-editor for the aged care sector, working at The DCM Group. He writes for The Weekly Source, agedcare101, villages.com.au and the DCM Institute fortnightly newsletter Friday. Ian is in daily contact with CEOs of retirement living, land lease and the aged care operations and makes a new contact every week. He investigates media releases, LinkedIn and Facebook for a good source for ideas for stories.

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Lauren Broomham

Retirement and Aged Care Journalist

Lauren is a journalist for villages.com.au, agedcare101 and The Donaldson Sisters. Growing up in a big family in small town communities, she has always had a love for the written word, joining her local library at the age of six months. With over eight years' experience in writing and editing, she is a keen follower of news and current affairs with a nose for a good story.

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Jill Donaldson

Physiotherapist

Jill has been practicing as a clinical physiotherapist for 30 years. For the last 13 years she has worked solely in the Aged Care sector in more than 50 metropolitan and regional facilities. Jill has also toured care facilities in the US and Africa and is a passionate advocate for both the residents in aged care and the staff who care for them. She researches and writes for DCM Media.

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Chris Baynes

DCM Media, agedcare101

Chris has been a journalist and publisher in the retirement village and aged care sectors for 11 years. He has visited over 250 retirement villages and 50 aged care facilities both within Australia and internationally. Chris is a regular speaker at industry conferences plus is a frequent radio commentator.

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Annie Donaldson

Nurse and Carer

Annie has a long career in both nursing and the media. She has planned and co-ordinated the medical support from both international TV productions and major stadium events. In recent years she has been a primary family carer plus involved in structured carer support.